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Monday, April 29, 2013

In God's "Waiting Room" (Part 5: What's in a Name?)

"A good name is better than precious ointment..." - Ecclesiastes 7:1a

A dear friend - who himself is a father of four beautiful children - once commented that other than our faith and our deep love for God and His Word, there are perhaps only a few things we can leave for our children, a deep and meaningful name being one of them. I believe he is right. Materials fade, skills may be forgotten, advices ignored...but a name sticks forever. Even after we are long "gone", the first thing people still remember us by is our given name. 

Early on in our pregnancy we began to think of names for the baby we are expecting. Because I'd been wishing we were having another girl so that Eleanor could have a life-long best friend, picking a girl's name was fairly easy and we had settled for one. Jim was considering a couple of boy's names but we hadn't decided on a specific one just yet. Then, soon after we learned about our unborn baby's diagnosis along with the gender, I felt the urgency to pick a more fitting name given the heart breaking prognosis. 

Even though medically speaking the prognosis seems so final, we are still clinging onto Jehovah-Rapha, the Lord our Healer, and trusting in Him, our loving Father to give us strength and the faith to accept whatever His will may be for our baby and for our family. With that in mind, we went back to the drawing board to name our unborn precious child. Not long after, Jim sent me the following via email: 

I would like to name our daughter "Eve".  It is an English/French form of a Hebrew name "Chava", which is derived from "chai" meaning "life".  Of course Eve is the first woman, and the mother of all people, the one who gave birth to all human life.  

As we struggle with our little one between life and death, I want us to hope "life" for her, that God would bestow glorious "life" upon her. "Eve" recalls life that is shortened and yet life gained for all eternity in our gracious God as He receives into His loving arms His covenant child.


"Eve" is also short for "evening," referring to a time of anticipation for the following event. For our Eve, she can look forward to her dwelling in God's presence, in glory, and future resurrection, and future reunion with her parents and sister.


In the Bible, the first mention of a woman is simply that she is a "female" (Heb. neqebah) [Gen.1:27].  Even when Adam sings of her creation [Gen.2:22] made from his rib, and in all subsequent mentions [Gen.2:24; 3:1...], she is simply a woman/wife/(Heb. ishshish).  


Of course, we know that she and Adam fell in sin and were cursed and expelled from the Garden in chapter 3, but as soon as God's curse/gospel was pronounced, Adam's immediate next move was that of faith and hope by naming his wife the "mother of all living"/(Heb. havvah)/"Eve" [Gen.3:20].  


Adam, the first man who was cursed but heard the gospel, gave Eve her special name.  This testifies that all is not lost, but that "life" will continue even after death.  After our faint life in this broken and accursed world, we can look forward to our true and abundant life in glory!

I couldn't have agreed more with Jim's pick. I thought it was perfect as it is a constant reminder to us that our Father in Heaven is the creator of life and in control of it, in the present and in the one to come. 

For the middle name we wanted to keep the first syllable the traditional Korean family character passed down to our children's generation, which has the sound hae, therefore picking the Hebrew name Hanna which means "favour" or "grace". So our littlest baby girl's full name is Eve Hanna Jung - a life graced by God, or a life in God's favour - and she shares the same initials as her big sister, making it that much more special. 

Tuesday, April 23, 2013

In God's "Waiting Room" (Part 4: A New Reality)

When we came back from our nine months of furlough in the U.S., it was January of 2012 and Eleanor was 17 months old. After a few months of settling into our new home, we reconnected with the Mothers' Group we had been a part of since Eleanor was born. Out of the ten or so mother-child duos, only three had continued meeting up along with the addition of another mother-son pair that joined the group shortly before our return.

As we continued to meet up week after week, eventually all of the four mothers except myself got pregnant with their seconds. As the months passed and their 'tummies' grew, Eleanor's keen perception and language ability also began to grow exponentially. Slowly, she began to ask questions about the mommies' growing tummies, and I'd explain to her that there were babies in there. Then sure enough, my little smarty-pants Eleanor would take a good look at my flabby-and-pudgie-from-not-having-completely-lost-my-pregnancy-fat belly and would ask, "Do you have a baby in your tummy?"! This went on for - oh boy! - the duration of their pregnancies!

Then, as each of the four babies were born and the mothers began bringing them to our play times, Eleanor became fascinated with the sight of breast-feeding! As you can imagine, I had to answer to her countless hours of repetitive questions, "What are they doing?", "Why do babies eat their mommies 'tchji-tchjis' (Korean baby word for boobies)?", and so on. As if that wasn't enough...each week we got together with the group, Eleanor was more interested in staring at the mothers breast-feeding their newborns than playing with her friends.  After her dose of breast-feeding 'lessons', she'd come home and breast-feed her dolls.

Over the months, each time she'd see the babies in our Mothers' Group or any other baby at the park or at the shops, Eleanor would go up to them, tickle their feet or gently rub their cheeks and make comments like "S/he's a cutie!". Once, when the Mothers' Group came over to our house, we mothers were having tea at the table with the babies laying on the sofa and the toddlers just running around playing, and I literarily caught Eleanor quite boldly try to pick up one of the babies in her arms! She couldn't get enough of them; she just loved them to bits! ALL this to say...I was quite surprised by Eleanor's fascination, love, and interest in babies. We could so clearly imagine Eleanor with a little sibling...I guess that was the extra push that guided us in our decision to try for another baby.  

So when we finally found ourselves pregnant in early November of last year, we were beyond overjoyed! As you can guess, our hearts and minds began to imagine Eleanor with a little sibling - playing with...caring for...dotting on...we could not wait to tell her we were expecting a baby! Though we tried to keep our pregnancy quiet, we began to throw a few hints at Eleanor since by then she was nearly 2.5 years of age and already asking lots more questions about babies. When she'd ask me "Do you have a baby in your tummy?", I'd say "Would you like mommy to have a baby in my tummy?", or "Do you want a baby brother or a sister?". We even began praying together for one. Slowly, Eleanor began to piece the puzzle together on her own, and it didn't take long for us to casually let her in on our secret - this was after we had found out the baby's heart rate was normal after the initial scare. Amazingly, Eleanor never spilled the beans to anyone, and most people we saw on a regular basis didn't suspect anything because they already knew of her 'obsession' with babies.

Well, fast forward to January 18, 2013, when at ten in the morning Jim, Eleanor, and I found ourselves sitting in one of the waiting areas of the newly erected and sterile buildings of our local hospital. After thirty long minutes of waiting, Dominic, the Genetic Counsellor who had called us to come in for test results shows up, takes us to a nearby private meeting room, and after a few pleasantries goes on to tell us the devastating news.

Simply put, we were told that even though the nuchal translucency ultrasound result came back as normal, due to abnormal levels of two specific pregnancy hormones, I was found to be at high risk of carrying a baby with a genetic or chromosomal disorder.  He proceeded to tell us that if that were the case that, there is no cure for such a disorder as it affects every cell of the baby's body, that it is a fatal disorder whereby most babies are miscarried during the first trimester, that most of the babies that survive to the second trimester are also miscarried before they are carried to term, and of those that are carried to term, most are stillborn or die at birth or shortly after birth, with a very small percentage living past a few hours or days, and hardly any making it to their first birthday.

As if that wasn't hard enough news to hear, Dominic went on to tell us that most parents who find out they are at risk of carrying a baby with such a fatal chromosomal disorder, decide to terminate the pregnancy. It was really hard to hear and digest that...Bear in mind that these first trimester tests DO NOT diagnose a problem; they only signal that further testing should be done. As Dominic sat there waiting, giving us a moment to get over our initial shock from the hardest news we've heard, I couldn't help but wonder if he wasn't waiting for an immediate 'response' to his last statement...

Time seemed to have frozen, but the silence was broken as we began to discuss further testing options available, their risks, the time at which they can be administered. We were not ready to make any abrupt decisions; we wanted time to process everything, to gather all the necessary information we needed, and to PRAY! Thankfully, we had until week 20 of pregnancy, and at this point I was 14 weeks along. In the meantime, we were given the option and scheduled to return in two weeks to get another more thorough ultrasound to check our baby's condition, at least as much as they could see so early in the pregnancy, if we weren't comfortable undergoing further testing.

Those two weeks of waiting really felt like the longest of our lives. We were scared, confused, not knowing who to turn to...we had not made our pregnancy known to anyone except our parents and siblings...even though we didn't even know what nor how to pray, we just pleaded to God asking him to help us through it all. We kept the news to ourselves, turning to the only source of information we had...the Internet...and looked up and searched for whatever information we could gather, all the while scared of what the future could hold. We did further reading on the disorder, searched for stories of others who had gotten similar screening results only to discover that it was a false diagnosis...basically we were looking for a glimmer of hope...We had NO IDEA what we were doing. We contemplated asking a few close individuals to pray for us but we thought it'd be best to wait until we got a proper diagnosis.

On February 7, 2013 at 16 weeks of pregnancy, we headed to the hospital again for a more thorough ultrasound at which point one of the senior doctors, who later we found out is a specialist in the area of Fetal Chromosomal Abnormalities, came in to tell us that they had found serious and fatal abnormalities in our baby's tiny heart - one of the markers of the chromosomal abnormality they had screened our baby to have. He explained what the prognosis would be like if the baby is found to have or not have any chromosomal issues and the treatment options for each case scenario. He reassured us that no matter what, that they would take good care of us. We were so thankful to hear those words...

The doctor's recommendation at this point was that I undergo a diagnostic test - even though there is less than one percent risk of miscarriage - since it could tell us exactly what the problem is with the baby and they can make a better prognosis and come up with better treatment plans. By this point Jim and I had already discussed at home that we would go ahead with the diagnostic test.  Whether our baby had a chromosomal disorder or not, we needed to know how to fight for her life...Thankfully we were able to have the test done that same day. We'd only have to wait a few days - the weekend - to get the results.

Monday, February 11, 2013 rolled around and we were right back in the tiny meeting room at the hospital to hear that the tests did indeed confirm that our baby has a chromosomal disorder. The thought that we'd have to somehow explain this new reality to Eleanor was one of the things that pained my heart the most...

(to be continued...)

Saturday, April 20, 2013

A side note

I know I have been taking my time to write. The truth is, I feel like I've reached a road-block so to speak. It hasn't been easy to organise all my thoughts and feelings to express myself in a way that I hope to be 'heard'. I hope you understand. There's so much I can and wish to share, but at the same time I feel the need to keep some things private, and all the while I'm trying to be careful as to not subconsciously offend anyone with what I share here - the facts, my thoughts and my take on things. I guess mostly I just feel very vulnerable. 

One of the very first things that happened to me at the very beginning of this painful and scary journey was that I became overcome with a sense of guilt. Guilt for not having been more compassionate towards others whom I've witnessed suffer in the past; guilt for having overlooked the fact that there may be people I know going through hardships and how I may not have extended my hand and my heart when they needed the most. 

More specifically, I began to recall the many friends and relatives who've lost a parent or another family member, the friends who've lost their five year old daughter on an automobile accident, the friends who lost their three month old newborn son to SIDS, the friends who've watched, fought, and prayed for the life of their premature daughter whom the Lord eventually took to be with Him after two months, the friend who struggled with cancer for nearly ten years before going 'home'...I can't help but think about how fragile they were when going through what they've faced, the vulnerability that has probably caused them to take cover at times, in place of facing each day and, more importantly, people in general.

I guess it's true that it takes a certain amount of hardship to really understand the pain of your brethren and honestly empathise. I am certainly not saying that I am 'there' but that I feel I may be on my way. Then, just this month we hear the news of the tragic death of the son of Rick Warren - the well known pastor of Saddleback Community Church and the author of A Purpose Driven Life - and I came across this article that very much touches on the subject of vulnerability in the face of trials. 

Here is the article (which you can read in full if you hover over and click on the title) along with an excerpt from it which I would like to highlight: 

I was devastated to hear the news of Rick Warren's son, who took his own life on Friday after a lifetime of battling serious mental illness. 

Unfortunately, over the past 24 hours I've seen both individuals and news outlets posting speculations about Rick Warren, his son and their relationship, with what I perceive to be an attempt at figuring out what went wrong. People seem to want to assign blame to something or someone -- to unlock some mystery that would explain Matthew's suicide.

When we hear about grieving parents it can be so tempting to try to assign blame, because if they aren't to blame, then we have to grapple with the reality that sometimes, tragedy is senseless. This is an uncomfortable truth: awful things happen to children that parents cannot prevent. It's a truth so painful that we would rather throw grieving parents under the bus than face it. 

I think this is an awful but real human impulse -- we want to find a way to exclude the possibility that something bad could befall our children. I will admit here that I'm not immune to this impulse. When something horrific happens to another child, I find myself quickly cataloging the details, trying to find something that would make the tragedy exceptional -- some slip-up that the grieving parent made along the way that would comfort me from a concern that it could happen to me. I've done it when I've heard about infant death: I've scrambled to figure out if the parent was doing something wrong. Was there some rule they failed to follow that would assuage my anxiety about my own child's mortality? I found myself doing this as I watched the Sandusky trial as well -- quickly casting aspersions on parents of the victims for their lack of discernment.

I've been going back and forth between writing this post along with another draft of just the continuation of our 'current story'. In the end, I felt I needed to clear my mind first to really come across as genuine as I can when sharing this journey with whoever is reading and following. I am in no way assuming that those who visit this blog will turn against me. My main point is that the more I try to make  sense of the reality that our family is facing these days, the more vulnerable I feel...on the one hand I desperately want to reach out and ask for support, but on the other hand I fear that in doing so I will expose my wounds to greater hurt.

As a woman and a parent, I personally am quite sensitive to what I can handle seeing or even reading.  So if I do not include details of our experience please understand that I am simply protecting our privacy as well as protecting myself and others from unecessary burden and heartbreak. At the same time, I am only human and sometimes I may slip up and disappoint. Either way, I hope you continue to read with a grain of salt. Whatever I may or may not share, I hope you understand...

Friday, April 12, 2013

In God's "Waiting Room" (Part 3: Joy and Pain of Parenthood)

It's a well known fact that parenthood is hard. It's a never ending roller coaster of exhilarating joy and crippling fear. Even the best of parents in the world will admit to it. One of the biggest fears I was plagued with as soon as Eleanor came into our lives was our 'advanced' age as her parents...the number of years between her and us, her parents...the stark reality that as Eleanor would develop and grow, we'd only continue to - quite literally - 'decay' physically.  Yes, quite dramatic of me...but I couldn't help the awful thoughts like What if something were to happen to either myself or Jim, or even to both of us, leaving Eleanor all by herself?, or What if Eleanor becomes an orphan before she even finishes college?, etc.

I know I wasn't 'the only' nor the first parent to have those fears. My younger sister who got married and had her first kid at age 23, has recently decided that she and her husband will never fly anywhere together without their kids. I think the rational behind that fear of mine was the tragic fact that my own father passed away just six months shy of him turning fifty years of age, when my youngest sister and brother were still quite young. I think when one experiences the death of a loved who's life was cut way too early, the issue of mortality becomes much more real and close. Maybe we become extra fragile and fear that death could strike, again, sooner than expected.

Ironically, these contrasting feelings of fear and joy associated with parenting - left us with the desire to have more children...realistically just one more. You see, we hoped God would gift us with a sibling for Eleanor so that she'd have someone as close in blood as it gets to her parents - besides grandparents, uncles and aunts, and cousins. However, we weren't driven by irresponsible or frivolous impulse. We prayed about and thought through the risks and costs of such a pursuit.

So you can imagine our excitement when we found ourselves pregnant in November of last year, 2012!  We were besides ourselves. According to our calculations, it looked like this baby's due date was very close to Eleanor's birthday! We so desperately wanted to tell our families right away. When we told our parents about being pregnant with Eleanor, it was on Christmas Day in 2009. We had hoped to be able to tell them about this pregnancy again over Christmas.  However, due to the nature of the sensitivity of pregnancy, we were cautious as to not share the news with anyone before we felt things were ok.

We were even more careful to not 'jump the gun' when during the very first ultrasound at six weeks to confirm pregnancy, we were told that the baby's heart rate was bordering on the low side. We were scared, worried, and our hearts dropped. But the midwives reassured us that it could just be that the baby was still too young. They scheduled for us to come back the next week for a second ultrasound, at which point our baby's heart rate had gone up to "normal" range. We let out sighs of relief and went about our lives for the next few weeks until the hospital would schedule us for pre-natal care starting sometime at 12 weeks of pregnancy. (Note: In Australia, a lot of hospitals will not allow pregnant women to make a booking until one is 12 weeks along. Until then, you're expected to be seen by your  family doctor, aka your general practitioner.)

We were contacted for our first pre-natal consultation in early January at 13 weeks which coincided with the nuchal translucency and the biochemical screening (not a diagnosis) for abnormalities, particularly chromosomal ones.  When we were pregnant with Eleanor, we received our pre-natal care for the first four months in the U.S. when we were there for our short furlough. There, screening for fetal abnormalities was optional and we had opted out. Well, with this current pregnancy, because of my age, we were under the impression that such screening was not  'optional' but more of a necessary precautionary routine. We happily obliged because we thought there would be no harm in knowing of anything unusual as it would only help us to receive proper care.

We received the nuchal translucency ultrasound result right away and it had come back as being normal. We were grateful and relieved!  But we would have to wait a few days for the biochemical test results.  Naively we convinced ourselves that everything was fine. We wanted to wait for the blood tests results first, but we couldn't keep from sharing the news with our families any longer. So we did, and as expected, everyone was extremely happy for us.

The very next day, we received a call from the hospital asking us to come in right away for the results of the blood test results. Right there and then I feared it wasn't good news. If everything was fine, surely they would have just given us the result over the phone., I thought. Our hearts raced faster than the speed at which we drove to the hospital. Our stomachs were in knots and our eyes glassy as we waited for Dominic, the Genetic Counselor with whom we'd be speaking.

(To be continued...)





Saturday, April 06, 2013

In God's "Waiting Room" (Part 2: Journey into Parenthood)

When Jim and I got married nearly 15 years ago, in 1998, we both agreed we wanted four children - two boys and two girls, and in that specific order. I've always wished I'd had an older brother, so I wanted my children to have one...and of course, children must have siblings in the same gender to play with, especially close in age, so our next child must be another boy....also, a family is not complete until you have children in both genders, so next we'll have a girl...and so on went our dream. 

Well, things didn't quite happen as we had wished and hoped for.  In fact, we struggled with a life of infertlity for the first twelve years of our marriage. We struggled together as a couple, then secretly as individuals each going through the emotional and sometimes spiritual ups and downs at different times. Mostly it was a quiet and lonely struggle for us. We confided and found solace and support in friends going through similar pain, but in the end our true comforter and healer was our Father in Heaven. 

Then, as we found ourselves on the journey toward redemption from such pain and struggle, God "mysteriously" - but we believe providentially - gifted us with Eleanor in 2010.  I cannot fully explain what it is like to be given a gift you fully did not expect...it had taken a painstaking 12 years of searching, tweaking, and figuring out our life's purpose as a childless couple, and now we had to "shift gears" and literally figure everything out all over again...it was/is both scary and exciting. It felt  as though suddenly life came in full force and we are extremely grateful to God and we do not take anything for granted. 

In November of last year, 2012, we found ourselves pregnant for the second time! And thus began this season of our lives where we find ourselves, as Jim puts it, in "God's waiting room". 

(To be continued...)

Thursday, April 04, 2013

In God's "Waiting Room" (Part 1: Keeping Memories)

It is with a bit of aprehension that I return here to write about life as it unfolds during this season. Some of you who used to (or still do) follow this blog may have received emails from us about the incredibly difficult predicament in which we as a family find ourselves. (More on this later...)

It is a very difficult time for us and most of the time we have no idea how to process things let alone clearly articulate our thoughts and especially our emotions...no one is ever prepared for such circumstances, there's no "dress rehearsal"...Actually, we are quite shocked and surprised at our "composure" and ability to carry on...it is truly only by God's grace and mercy! So each day, we find ourselves sitting in God's "waiting room", clinging onto Him who feeds us each morsel of nourishment we need to survive until His will for our lives is revealed, hourly, daily, monthly...

As much as I'd love to be able to beautifully and eloquently express myself here, I am not a writer. Heck, often times I have a difficult time expressing myself in person! Words always fail me...Also, I still have much to learn when it comes to living a grace-filled, graceful, and a gracious life.

I have come back to blogging to record my thoughts as best I can mainly in order for me to be able to come back and REMEMBER, especially God's daily mercies for us as a family during this time, but also to keep family, friends, and whoever may be interested, informed. So I hope that you read this without any expectations or judgement, but as a means for you to walk and pray with us in heart and spirit.

I'm still unsure whether I will post my blog updates on facebook...this may be the only time. So if you would like to follow and keep reading, please save my link name onto your reading list. Blessings.

To be continued....